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Children's Books - 4-8 Years New Titles

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Bendy Bones and Stretchy Skin: An Ehlers-Danlos Book

ISBN: 9781634896771
Binding: Hardcover
Author: Pey Carter & Abigail Bailey
Illustrator: Katarina Stevanović
Pages: 40
Trim: 10 x 8 inches
Published: 01/23/2024

Inspired by the author's real-life story about Ehlers-Danlos, this disability inclusion book for kids follows Abigail as she's diagnosed with an invisible disability—and her friends come together to support her.

"This sweetly affirming story illustrates how knowledge and understanding go a long way toward acceptance." -Jules Machias, author-illustrator of Both Can Be True and Fight + Flight

When Abigail is diagnosed with Ehlers-Danlos, at first, her classmates don't understand.

Abigail doesn't look like she has a disability. What is her special chair for? How do walk breaks help?

In this kids book about disabilities, Abigail and her mom bring awareness to her invisible illness-and her friendships grow stronger because of it.

Approximately 23% of children in the United States, and 240 million globally, have a chronic condition. And many of these are what are known as "invisible illnesses"-so they can be hard to explain!

Coauthors Pey Carter and Abigail Bailey are a mother-daughter duo who both have the hypermobility subtype of Ehlers-Danlos Syndrome (hEDS). And one of their many shared passions is educating kids and adults about what it's like living with this condition.

Teaching values like friendship and kindness, this disability inclusion book for kids is a perfect fit for:

  • parents and caregivers teaching their families about disability,
  • elementary school teachers helping shape a more accepting world for our kids,
  • pediatricians and child psychologists looking for #ownvoices resources, and
  • anyone who loves someone with an invisible chronic illness!

Representation helps our kids show up for each other. Living with a chronic illness can be challenging-and support from friends and community makes all the difference.

"Touching and educational, this book strikes the perfect balance of being easy to read yet deep and meaningful. I highly recommend it to anyone with Ehlers-Danlos and to open-minded people who want to learn about invisible illnesses." —Libby Scott, coauthor of the best-selling series, Can You See Me?

 

Pey Carter is an author and public speaker specializing in mental health, invisible disabilities, and trauma. Her focus is using storytelling and narrative justice to foster deeper discussions and inspire change. Pey is a US Army veteran with PTSD, Dysautonomia, Postural Orthostatic Tachycardia Syndrome, Fibromyalgia, Generalized Seizure Disorder, Ehlers-Danlos, Autism, and Avoidance/Restrictive Food Intake Disorder. In her free time, Pey enjoys geocaching and keeping their cat, Bear, from taking over the world.

Abigail Bailey is a fun-loving social butterfly who likes to spend time with her friends and family. She is obsessed with anime, especially anything made by Studio Ghibli. Some of her hobbies include biking, playing piano, and singing. One of Abigail's reading goals is to finish the entire Warrior Cat series.

Katarina Stevanović is an artist, educator, and illustrator of over two hundred children's books published across the world. She has a master's degree in the Faculty of Applied Arts from the University of Arts in Belgrade, Serbia, and works in a variety of artistic mediums. In 2021, two books she illustrated-Ni Hao China and Shalom Israel-were recognized by the Story Monster Book Awards.

 


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